Mogil's MobCast: A Scleroderma Chat

Some allow their diagnosis to define them, falling victim to their diseases and living at the mercy of what the doctors tell them. Then there are those who face their illness head-on, taking responsibility for their own healing and choosing to a live thriving life.-Cami Walker

Mogil's Mobcast

The goal of my podcast is to have a central place for people afflicted with Scleroderma and a place for their families and friends to be informed by specialists in either Scleroderma or autoimmune topics. I will cover a wide range of topics like nutrition, medications, vitamins, and lifestyles. I will also showcase stories from others affected by Scleroderma and how they have dealt with the disease.

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I was grateful to have had the opportunity to be interviewed by Eileen Laird and to tell my journey. Eileen also has an autoimmune disease and hosts a podcast called Phoenix Helix. If you have a chance give it a listen. She’s is inspiring!

Featured Podcast Dr. Lee Shapiro and Avni Sanghi

Episode 127

Lee Shapiro,M.D. is Professor of Medicine in the Division of Rheunatology at Albany Medical College in Albany, NY and directs the scleroderma center there. He is also founder and chief medical officer of the Steffens Scleroderma Foundation (Steffens-scleroderma.org). He is a graduate of The College of Physicians and Surgeons (Columbia University) and did his residency and rheumatology fellowship training at the University of Pittsburgh, where he was mentored by three pioneers of scleroderma research, Drs. Rodnan, Medsger and Steen. His 40 year career has been devoted to building a model of multidisciplinary care for individuals with scleroderma, fostering multidisciplinary research collaborations, and promoting awareness and understanding of scleroderma by health care professionals. He has been on the medical advisory board of the Scleroderma Foundation TriState for more than 30 years

Avni Sanghvi is a third year medical student at Albany Medical College. She earned her bachelor’s degree in Global Public Health and Biology from New York University. While an NYU student, Avni interned with the New York City Department of Health and Mental Hygiene to increase youth outreach and expand sports program access. She also conducted research investigating early detection and intervention of osteoarthritis at NYU Langone. In medical school, Avni’s research focuses on Raynaud’s phenomenon and its association with other conditions and quality improvement in pediatric rheumatology. Patient engagement and advocacy remain at the center of her work. She also conducts bioethics research and serves on the Albany Medical College Advocacy committee, which organizes medical student meetings with state lawmakers.