Mogil's MobCast: A Scleroderma Chat
Some allow their diagnosis to define them, falling victim to their diseases and living at the mercy of what the doctors tell them. Then there are those who face their illness head-on, taking responsibility for their own healing and choosing to a live thriving life.-Cami Walker
Mogil's Mobcast
The goal of my podcast is to have a central place for people afflicted with Scleroderma and a place for their families and friends to be informed by specialists in either Scleroderma or autoimmune topics. I will cover a wide range of topics like nutrition, medications, vitamins, and lifestyles. I will also showcase stories from others affected by Scleroderma and how they have dealt with the disease.
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I was grateful to have had the opportunity to be interviewed by Eileen Laird and to tell my journey. Eileen also has an autoimmune disease and hosts a podcast called Phoenix Helix. If you have a chance give it a listen. She’s is inspiring!
Featured Podcast Karen Ceresnak
Karen Ceresnak is a pediatric intensive care nurse, wife, and mother of three whose life changed when her oldest daughter, Julia, was diagnosed with juvenile scleroderma at just five years old. Navigating the challenges of this rare disease, Karen quickly realized how isolating the journey could be for children and their families. Despite connecting with incredible physicians and receiving excellent medical care, there were few opportunities for children with scleroderma to meet others who truly understood what they were going through.
Determined to change that, Karen founded the Scleroderma Kids Alliance (SKA), a national 501(c)3 nonprofit dedicated to bringing hope, connection, and community to children living with scleroderma and their families. Under her leadership as president, SKA has launched the nation’s first family camp dedicated to children with scleroderma, creating lifelong friendships and a supportive community for families across the country. Through family camps, events, and year-round support, SKA is creating opportunities for children to build friendships, make lasting memories, and discover they are never alone.
Dr. York’s research focuses on the role of the immune system on the development of systemic sclerosis, and other vascular and fibrotic diseases.